Development of a SCI Module for the Pediatric Quality of Life Inventory (PedsQL™)
Summary: Development and Initial Validation of the PedsQL - SCI Module.
Oral presentation
Psychometric Examination of the International SCI Basic Caregiver Data Set and the International SCI Basic Bowel Data Set in Pediatric SCI
Background: The International SCI Data Sets were developed to capture the minimal amount of information to an individual’s medical status and experience living with SCI.
International Data Sets and NINDS CDE: Overview and Application in Pediatric SCI
This presentation will discuss the importance of data standards in SCI research and care.
Keynote: Activity-based Therapy Targeting Neuromuscular Recovery after Pediatric Spinal Cord Injury
Introduction and scientific tenets, translation to clinical practice and program of care, re-visiting the lenses with which we view the problem/challenge of paralysis